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The Changing Faces of Epilepsy


Whole Life Questionnaire

 

OVERVIEW

The results of a survey conducted for Eisai Inc. identify several challenges people with epilepsy face, and reveal seizures are just one of many hurdles to overcome. For example, almost half of adults with epilepsy who take medication experience side effects that may impair their ability to perform daily activities such as working.

Below are sample questions from the survey. By completing the questions and sharing your answers with your healthcare provider, together you can find a treatment that works best for you.

WHOLE LIFE QUESTIONNAIRE

Below are sample questions from the survey. By completing the following sample questions and sharing your answers with your health care provider, together you can identify a treatment that works best for you.

Please note this survey is NOT a diagnostic tool. Please complete and print the survey and share the results with your physician.

1) How would you rate your overall health?
2) How educated do you feel about the health issues that affect you personally?
Not at all Educated           Extremely Educated
3) How strongly do you agree or disagree with the following statement: My current health situation limits me from living the life I want to live.
4) How often do you experience seizures?
5) How many medications are you currently taking to manage your epilepsy?
6) On a scale of 1-5 where 1 represents "not at all satisfied" and 5 represents "extremely satisfied", how satisfied are you with your current treatment regimen's ability to control your seizures?
Not at all Satisfied           Extremely Satisfied
7) Does your epilepsy prevent you from participating in any of the following as much as you would like to?
Shopping   
Dining out   
Exercising or participating in sports   
Traveling   
Socializing outside your home   
Driving a car   
Spending quality time with family and friends   
Work   
8) Has your health care provider ever discussed any of the following with you? Please select all that apply.
9) Do you experience side effects from your medication?
10) How often do you experience the following side effects?
 NeverRarelySometimesOften
Sleepiness
Dizziness
Headache
Nausea
Irritability
Weight gain
"Fogginess" or lack of clear-headedness
Rash
Double vision
11) When prescribed a seizure medication, how important are each of the following considerations to you?
Not at All Important ... Extremely Important
Having minimal side effects (e.g., headaches, nausea)
Having very little impact on my memory, clear-headedness
Being able to control breakthrough seizures
Being recommended by my physician
Being recommended by other people I know who have seizures
The medication is available in different strengths
Decreasing the frequency of seizures
Decreasing the intensity of seizures
Being able to drive a car while on the medication
Being able to participate in physical exercise while on the medication
Being able to work at a full-time job while on the medication
Being able to take it without having it interact negatively with other prescription or over the counter medications
Being able to take it without food (e.g., taking it on an empty stomach or with meals)
Being able to maintain my weight while on medication
Being able to take it only once or twice a day
12) While on an epilepsy treatment regimen, have you ever…?

Please note this survey is NOT a diagnostic tool. Please complete and print the survey and share the results with your physician.


NATIONAL SURVEY RESULTS

Survey Methods and Population:

  • National, online survey, conducted by Harris Interactive, a global market research firm
  • 367 U.S. adults with epilepsy, who are being treated with one or more epilepsy medication
  • 58% of respondents are currently taking one epilepsy medication; 42% are taking more than one
  • 61% of those polled are female
  • 83% are of "working age" (between 18 - 58)

Survey Highlights:

Medication and Side Effects

  • 85% of respondents are satisfied with their current treatment regimen's ability to control their seizures. However, 46% experience medication side effects that can impair their ability to perform daily activities.
  • Of the 46% of respondents who experienced side effects:
    • The following side effects were experienced "often:" sleepiness (48%), fogginess or lack of clear headedness (35%) and weight gain (24%).
    • Side effects that impaired their ability to perform daily activities "a great deal" include sleepiness (35%), fogginess (33%), dizziness (25%), headache (22%), nausea (20%), double vision (20%), weight gain (19%), irritability (19%), and rash (6%).
    • 57% said they cannot work as much as they would like and 55% can't drive as much as they would like.
  • There are several important factors adults with epilepsy consider in finding the right treatment for them. The three most important are:
    • Reducing the frequency of seizures (86%)
    • Experiencing few side effects (71%)
    • Getting back to a normal routine, such as exercise, work, etc. (69%)

Overall Health and Life Style

  • Almost six of every 10 respondents (58%) feel their "current health situation limits them from living the life they want to live."
  • About half (51%) were prevented from participating in at least one routine activity as much as they would like, including driving a car (37%), working (34%) and exercising or playing sports (25%).
  • According to the survey, overall quality of communication with the primary health care provider who treats their epilepsy was excellent (48%) or good (34%). However, less than half of respondents (47%) said their physicians addressed how epilepsy treatment may impact their current lifestyle.

Compliance

  • 65% of all those polled reported forgetting to take medication, yet only 27% said their physicians addressed medication compliance strategies with them. (Medication compliance is a serious concern for people with epilepsy, as noncompliance with AED therapy is a leading cause of breakthrough seizures.)

About the Survey

This survey, commissioned by Eisai Inc., was conducted online by Harris Interactive within the U.S. between October 11 and October 26, 2004 among 367 U.S. adults (aged 18+) who have been diagnosed with epilepsy and are currently taking at least one epilepsy medication. Figures for age, sex, race, education and income were weighted where necessary to bring them into line with their actual proportions in the population. Propensity score weighting was also applied to adjust for respondents' propensity to be online.

In theory, with probability samples of this size, one could say with 95 percent certainty that the results for the overall sample have a sampling error of +/- 6 percentage points. Statistical precision for the sub-sample of U.S. adults with epilepsy who take at least one medication and who experience side effects (174) is plus or minus 8 percentage points. This online sample was not a probability sample.

More information on The Changing Faces of Epilepsy can be found at www.ChangingFacesOfEpilepsy.com.

About Eisai Inc.

Eisai Inc. is a U.S. pharmaceutical subsidiary of Eisai Co., Ltd., a research-based human health care company that discovers, develops and markets products in more than 30 countries. Established in 1995, Eisai Inc. began marketing its first product in the United States in 1997 and has rapidly grown to become an integrated pharmaceutical business with sales of more than $1.7 billion in fiscal year 2003 (year ending March 31, 2004).

Eisai Inc. employs approximately 1,100 people at its headquarters in Teaneck, NJ, at its state-of-the-art pharmaceutical production and formulation research and development facility in Research Triangle Park, NC, and in the field. Between 1998 and 2003, Eisai Inc. moved up rapidly in the rankings (based on revenues) of U.S. pharmaceutical companies from No. 44 to No. 20.

About Harris Interactive

Harris Interactive Inc. (www.harrisinteractive.com), the 15th largest and fastest-growing market research firm in the world, is a Rochester, N.Y.-based global research company that blends premier strategic consulting with innovative and efficient methods of investigation, analysis and application. Known for The Harris Poll® and for pioneering Internet-based research methods, Harris Interactive conducts proprietary and public research to help its clients achieve clear, material and enduring results.

Harris Interactive combines its intellectual capital, databases and technology to advance market leadership through U.S. offices and wholly owned subsidiaries: London-based HI Europe (www.hieurope.com), Paris-based Novatris (www.novatris.com), Tokyo-based Harris Interactive Japan, through newly acquired WirthlinWorldwide (www.wirthlinworldwide.com), a Reston, Virginia-based research and consultancy firm ranked 25th largest in the world, and through an independent global network of affiliate market research companies. EOE M/F/D/V.

 

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